The history of ethical research… somewhat



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The history of ethical research… somewhat

http://phrp.nihtraining.com/users/login.php

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In doing human research today it is now recommended that you follow the guidelines of the National Institutes of Health. This is a federal organization designed to improve human health through biomedical and more importantly to us behavioral research.
This site is a tutorial, which means if we were to take the entire journey it would take up to two hours. But because most of you have the patience of a two year old we will only look at parts of it. I want you to focus on two aspects: (1) What are the reasons for having guidelines and structure in research? (2)What are some key factors that should be understood by all researchers?
First click on the section that says Introduction. There are four pages to this portion and you should take your time and read through each of them. Here it will describe why this website is necessary. Read about how the protection of basic human principals. CLICK BACK TO THE MAIN PAGE.
The page you come to will be the main homepage that you will be working with. It has seven different areas that you have the potential to view. As I said before I have two objectives in looking at this today, do you remember them? Umm, they’re listed above. CLICK ON HISTORY and let’s get to the first three questions. (SOME OF THESE ARE NOT IN ORDER YOU NEED TO INVESTIGATE A LITTLE BIT)


  1. Why were these three principals important?




  1. What purpose would the Nazi Medical War Crimes play in behavioral research history?




  1. Describe several aspects of the Nuremberg Code. (Why is it important?)


  1. Why would the Tuskegee Syphilis study be a good example of why a standard research conduct was needed for behavior and biomedical research?



  1. What does congress continue to do even to this day because of the Tuskegee Syphilis Study?

Now go to the last page of the HISTORY section. There you will find a timeline that has a number of significant events that have happened in human research. You will find the next several answers here.

Over……………………………………………………………………………………….


  1. In the Jewish Chronic Disease study, what was not communicated to the participants and why?



  1. What eventually occurred to the organizers of this study?



  1. How would the Willowbrook Study raise important questions about consent?



  1. Who was Jessie Gelsinger? What contemporary concern came up during his gene study.

Now you need to CLICK on the portion that says CODES AND REGULATIONS. This portion is 19 pages long. I know, I am a crazy man thinking you will read that much! You will only read portions. Here are a few questions to answer.




  1. What was the Belmont Report and what were the three main principals that it outlined?



  1. Why were these three principals important?

Ok now go back to the main page that had the seven different options, CLICK NEXT on the Respect for Persons option. Read through the learning objectives.





  1. Describe in a paragraph (put some thought into this) what informed consent is and why it is important?



  1. OK… after going through and answering all these questions and doing your intro reading on homework last night how important is research to sociology? How important is having ethical research that can be documented and tried again? What might be some difficulties that researchers have carrying out this research?



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